Well I’m pretty much back to where I was before going to Poland for the venoplasty procedure. My symptoms are the same as they were pre-Poland.
It has been quite an adventure with twists and turns at unexpected moments. Despite my best efforts to stay equally content with any outcome, I certainly felt excited when I had improvements and confused when I experienced a couple steps forward followed by a step backward.
I’m trying to not get discouraged because I think my improvements, although short-lived, indicate that there’s hope. Since the procedure helped me for a few months I’d like to find a way to have another treatment that makes the positive changes permanent.
Slowly the reality is setting in that I’m back to the baseline of where I started from. Sure I’m bummed that improvements didn’t stay longer. It was nice living with more cognitive abilities, more energy and not feeling overwhelmed when there more than two people in the room with me. I even went to a museum and wasn’t over-stimulated by the masses of people there!
I went into this saying that as long as it didn’t make me worse, and hopefully would stop progression of the illness, I’d be okay. So I’m sticking to my beginning premise just as my symptoms have returned to their original starting point.